A Face for Picasso: Coming of Age with Crouzon Syndrome

Ariel and Zan, identical twin sisters, were diagnosed with Crouzon syndrome at eight months old. They survived the rare condition but faced numerous appearance-altering procedures. Ariel's young-adult memoir explores beauty, identity, and resilience in the face of adversity.

Format: Paperback / softback
Length: 400 pages
Publication date: 11 December 2023
Publisher: Palgrave USA

At just eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.

Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life and yourself back together time and time again.

Despite the challenges they faced, Ariel and her sister remained close and supportive of each other. They found solace in their shared experiences and formed a deep bond that would last a lifetime.

In her memoir, Ariel shares her journey of self-discovery and acceptance. She explores the beauty that can be found even in the face of adversity and the power of resilience. She also sheds light on the emotional toll of living with a facial disfigurement and the importance of seeking support and community.

Through her story, Ariel inspires others to embrace their uniqueness and to see the beauty in themselves, even in the face of adversity. She proves that beauty is not just about physical appearance, but about the strength and resilience of the human spirit.

Weight: 344g
Dimension: 135 x 211 x 27 (mm)
ISBN-13: 9781250895578