Floppy: Tales of a Genetic Freak of Nature at the End of the World

Alyssa is diagnosed with Ehlers-Danlos syndrome and vows not to let it stop her, but her efforts to avoid being too sensitive lead to neglecting her health and other aspects of her life. Twenty years later, she is forced to confront the reality of her condition and finds herself tangled in chronic pain, a library job, and her wife's health problems.

Format: Paperback / softback
Length: 280 pages
Publication date: 13 July 2023
Publisher: Red Hen Press

When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being too sensitive lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head-on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?

Dimension: 216 x 140 (mm)
ISBN-13: 9781636280974