Healing Hearts and Minds: A Holistic Approach to Coping Well with Congenital Heart Disease

Healing Hearts and Minds is a book that provides information, hope, and connection for adults living with congenital heart disease (CHD). It highlights the psychosocial impacts of CHD and offers evidence-based coping and self-care skills to help individuals thrive despite the challenges they face.

Format: Paperback / softback
Length: 216 pages
Publication date: 13 January 2023
Publisher: Oxford University Press Inc

Congenital Heart Disease (CHD) is a prevalent birth abnormality in the United States, affecting approximately 1 in 100 babies. While significant advancements in surgery and medicine have led to improved survival rates by 75% since the 1940s, it's important to recognize that survival does not equate to a cure for CHD. Babies born with this condition face a lifelong journey of medical interventions, including surgeries, invasive treatments, ongoing monitoring, frequent medical check-ups, and significant limitations on physical activity. Additionally, poor public awareness about CHD can impact social inclusion and understanding.

While much attention has rightly been focused on meeting the medical needs of these children and providing their parents and caretakers with resources and information, there has been limited attention paid to the psychosocial impacts on individuals living with CHD, particularly as they grow, mature, and transition into adulthood. Prevalence rates for anxiety, depression, and post-traumatic stress disorder (PTSD) are significantly higher among people with CHD compared to the general adult population.

Living with CHD can evoke a range of emotions, including feelings of self-consciousness about scars, limitations on physical activity, and a sense of loss around many of life's ordinary experiences. Frequent hospital visits and the constant fear of emergencies can also contribute to stress and anxiety. Individuals with CHD may struggle with self-esteem issues, social isolation, and difficulty maintaining relationships.

To address these psychosocial challenges, it is essential to provide comprehensive support to individuals with CHD and their families. This includes offering mental health counseling, support groups, and educational programs that help individuals develop coping strategies, build resilience, and foster social connections.

Furthermore, healthcare professionals should be aware of the psychosocial impacts of CHD and collaborate with mental health specialists to provide holistic care. By addressing both the medical and psychosocial aspects of CHD, individuals can thrive despite living with this condition and lead fulfilling lives.

In conclusion, congenital heart disease is a significant birth abnormality that requires comprehensive medical and psychosocial support. By recognizing the psychosocial impacts of CHD and providing appropriate resources and care, individuals can thrive despite the challenges they face and lead fulfilling lives. It is essential to continue to raise awareness about CHD, promote research, and invest in innovative treatments to improve the lives of those affected by this condition.

Weight: 356g
Dimension: 157 x 234 x 27 (mm)
ISBN-13: 9780197657287