Missed and Dismissed Voices: Living with Hidden Chronic Health Problems

Missed and Dismissed Voices explores the impact of hidden health problems on the daily lives of adults with chronic conditions, combining research literature with illness narrative accounts to provide insights into how people adapt to their changing health status.

Format: Paperback / softback
Length: 208 pages
Publication date: 07 June 2023
Publisher: University of Toronto Press

Missed and Dismissed Voices is a groundbreaking book that delves into the intricate relationship between illness and identity. It seeks to unveil the profound impact of hidden health problems on the daily lives of a growing number of adults who live with chronic conditions and continually face the daunting task of sustaining their personal sense of healthiness throughout their life course.

The book revolves around the exploration of the meaning and management of both medically diagnosed chronic diseases and medically unexplained physical conditions or syndromes. In each instance, individuals are faced with the crucial decision of whether to share their private suffering with the public. To achieve this, the book incorporates comprehensive analysis derived from research literature, complemented by illness narrative accounts sourced from qualitative interviews and blog posts. Through the creation of fictional exemplary case studies for each of the chronic conditions examined, the book offers valuable insights into the process by which individuals adapt to their evolving health status and life circumstances.

One of the central themes of Missed and Dismissed Voices is the importance of giving voice to chronically ill people who often have their life stories overlooked or dismissed. By amplifying the narratives of these individuals, the book sheds light on the experiences, challenges, and resilience they possess in the face of adversity. Through their stories, readers gain a deeper understanding of the complexities of living with chronic conditions and the societal barriers that often hinder their well-being.

The book also addresses the broader societal implications of hidden health problems. It highlights the societal stigma and discrimination that chronically ill individuals often face, as well as the lack of adequate support and resources available to them. It calls for a shift in societal attitudes towards illness, promoting greater empathy, understanding, and compassion for those who are facing health challenges.

Furthermore, Missed and Dismissed Voices provides practical strategies and tools for managing chronic health conditions. It offers guidance on self-care, advocacy, and navigating the healthcare system, empowering individuals to take control of their health journey and advocate for their rights. The book emphasizes the importance of building a strong support network, seeking professional help, and finding meaning and purpose in life despite the challenges posed by chronic illness.

In conclusion, Missed and Dismissed Voices is a transformative book that offers a comprehensive exploration of the complex relationship between illness and identity. It sheds light on the hidden impact of health problems on the daily lives of individuals living with chronic conditions and advocates for a more inclusive and supportive society. By giving voice to chronically ill people and providing valuable insights and strategies for managing health challenges, this book empowers individuals to navigate the complexities of illness and live fulfilling lives.

Weight: 324g
Dimension: 151 x 228 x 17 (mm)
ISBN-13: 9781487523404