Ma'n H.Zawati
Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era
Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era
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Excellent- More about Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era
Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era discusses how individualistic autonomy fails to acknowledge the multilateral relationships implicated in genomic research, and proposes a reconceived duty to inform for researchers and a new standard of disclosure that is more meaningful and impactful for research participants and researchers.
Format: Paperback / softback
Length: 202 pages
Publication date: 23 September 2021
Publisher: Elsevier Science & Technology
Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era is a comprehensive exploration of the ethical implications of genomic research in the context of population biobanks. The book begins by examining how current judicial interpretation maintains the standard of disclosure at the core of genomic research. It then delves into the various limitations individualistic autonomy faces in the realm of gene and population biobanks, including an in-depth analysis of the complexities involved in benefit considerations within the research setting.
Furthermore, the book sheds light on how individualistic autonomy fails to acknowledge the multilateral relationships inherent in genomic research, encompassing the impact on the broader research community, research participants' families, and the general public. To address these challenges, the book proposes alternative approaches and ways for researchers, public health officials, and judicial bodies to interact in the future.
In essence, the book advocates for a reconceived duty to inform for researchers and a new standard of disclosure that is more meaningful and impactful for research participants and researchers. By implementing an understanding of relational autonomy that recognizes and sustains the multilateral relationships found in genomic research, this book aims to strike a balance between the rights of participants and the advancement of scientific knowledge.
Overall, Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era is a valuable resource for scholars, policymakers, and researchers interested in navigating the ethical complexities of genomic research in the modern era.
Weight: 430g
Dimension: 235 x 191 (mm)
ISBN-13: 9780323912860
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