Uncharted: How Scientists Navigate Their Own Health, Research, and Experiences of Bias

Uncharted is a collection of first-person stories by current and former scientists with disabilities or chronic conditions that highlight the intersectionality of minoritized identities with the disability community. The book serves as representation for scientists who have never felt comfortable disclosing their disability or who have never felt fully understood, and offers recommendations for how and why to improve access.

Format: Paperback / softback
Length: 328 pages
Publication date: 08 August 2023
Publisher: Columbia University Press

People with disabilities are significantly underrepresented in STEM (science, technology, engineering, and mathematics) fields, and unfortunately, they often face isolation and ableism within academic environments. This issue is particularly prevalent and requires urgent attention.

Uncharted is a powerful collection of first-person stories by current and former scientists with disabilities or chronic conditions who have navigated various changes in their careers due to their health. These stories offer a unique perspective, shedding light on common experiences that are often overlooked or left unspoken. They delve into the challenges faced by these individuals, as well as the joys, sorrows, humor, and wonder of science and scientists.

The book showcases a diverse range of perspectives on being disabled or chronically ill, highlighting the intersectionality of marginalized identities with the disability community. Contributors include individuals who are d/Deaf, blind, neurodivergent, wheelchair users, have experienced traumatic brain injuries, have blood sugar disorders, have rare medical diagnoses, or have received psychiatric diagnoses, among many others. These stories vividly depict the struggles and triumphs that these individuals encounter, providing a glimpse into their unique experiences within the scientific field.

In many cases, individuals with disabilities face significant barriers to accessing and participating fully in scientific research and careers. They often face discrimination, lack of accommodations, and a lack of understanding and support from their peers and colleagues. The contributors to Uncharted candidly share their experiences of navigating these challenges, as well as their strategies for thriving alongside their conditions.

This book serves as a powerful representation for scientists who have historically felt uncomfortable disclosing their disability or who have not felt fully understood by their peers. The stories shared in this book aim to normalize medical conditions and disabilities in scientific culture, offering recommendations for how and why to improve access and inclusion.

Uncharted is an essential and compelling read for current and aspiring scientists who are committed to making their fields more inclusive and supportive for everyone. By acknowledging the experiences of individuals with disabilities, we can work towards creating a more equitable and inclusive scientific community that values diversity and promotes the full participation of all members.

Weight: 414g
Dimension: 139 x 216 x 21 (mm)
ISBN-13: 9780231203630