Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome
Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome
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- More about Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome
Whitney Dafoe has been confined to a bedroom for six years due to myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious disease that affects 20 million people worldwide. Waiting for Superman follows his father, Ron Davis, a geneticist, as he searches for new treatments and a cure.
\n Format: Paperback / softback
\n Length: 240 pages
\n Publication date: 04 February 2021
\n Publisher: Atlantic Books
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For the past six years, Whitney Dafoe has been confined to a bedroom in the back of his parents' home, unable to walk, eat, or speak. His diagnosis? The mysterious disease myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), which affects 20 million people around the world who largely suffer in silence because the condition is little known and much misunderstood.
Waiting for Superman follows Whitney's father, groundbreaking geneticist Ron Davis, as he uncovers new possibilities for treatments and potentially a cure. At its heart, this book is about more than just cutting-edge research or a race to find an answer; it's about the lengths to which a parent will go to save their child's life.
Whitney's journey is a harrowing one, filled with pain, frustration, and hopelessness. He has been unable to work or attend school, and his family has struggled to cope with his condition. Ron, however, is determined to find a way to help his son, and he begins to explore new treatments and therapies that have not been tried before.
One of the treatments that Ron discovers is a gene therapy that has shown promise in treating ME/CFS. The therapy involves injecting a virus into the patient's body that targets the cells that cause the disease. While the therapy is not without risks, Ron believes that it is worth the potential benefits.
As Ron works to help his son, he also becomes a voice for the millions of people who suffer from ME/CFS. He speaks out about the need for more research and funding, and he works to raise awareness about the condition. He also starts a foundation to support research and provide resources for families affected by ME/CFS.
Through his journey, Ron learns that there is more to life than just science and medicine. He learns about the power of hope, perseverance, and love, and he discovers that even in the darkest of times, there is always a glimmer of light.
Waiting for Superman is a powerful and inspiring book that will touch the hearts of anyone who reads it. It is a testament to the strength of the human spirit and the lengths that a parent will go to save their child's life.
\n Weight: 396g\n
Dimension: 157 x 235 x 31 (mm)\n
ISBN-13: 9781911630616\n
Edition number: Main\n
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