Alzheimer's Disease Memoirs: Poetics of the Forgetting Self

This book explores writings by people with Alzheimer's Disease and their caregivers, focusing on self-construction, stigmatization, narrative strategies, health activism, and ethics of care. It provides a literary examination of the disease writing genre and is a valuable resource for researchers and scholars in ageing/dementia studies.

Format: Paperback / softback
Length: 153 pages
Publication date: 08 December 2022
Publisher: Springer Verlag, Singapore

This comprehensive book delves into the profound experiences of individuals living with Alzheimer's Disease and their dedicated caregivers. It explores a range of captivating themes, including the intricate construction of self-identity amidst the gradual erosion of linguistic and cognitive abilities, the pervasive stigmatization of aging, the diverse narrative strategies employed in these texts, often collaborative in nature, the emergence of health activism and advocacy driven by a biosocial perspective, and the ethical considerations inherent in caregiving. Through a critical analysis of memoirs penned by individuals with Alzheimer's Disease and their caregivers, the book offers a literary exploration of this specialized genre, shedding light on the valuable contributions made in this field. Moreover, it serves as a valuable resource for scholars and researchers interested in literary and critical theory, as well as those engaged in the study of aging and dementia.

Introduction:
Alzheimer's Disease, a progressive neurological disorder, profoundly impacts an individual's cognitive abilities, leading to a gradual decline in language and communication. This book aims to examine the rich tapestry of writings produced by individuals living with Alzheimer's Disease and their caregivers, shedding light on their unique perspectives and experiences. By exploring various themes, including the construction of self-identity, the stigmatization of aging, narrative strategies, health activism, and ethical considerations, this book seeks to contribute to our understanding of the complexities of this disease and the profound impact it has on individuals and their loved ones.

Construction of Self-Identity in the Face of Diminishing Abilities:
Living with Alzheimer's Disease presents individuals with a challenging and complex journey as their cognitive abilities deteriorate. The book explores how individuals navigate this transition and construct their self-identity amidst the gradual loss of language and memory. It examines the ways in which individuals adapt to their changing circumstances, develop new modes of communication, and find meaning and purpose in their lives. The narratives of individuals with Alzheimer's Disease offer a poignant portrayal of their resilience, determination, and the profound impact of the disease on their sense of self.

Stigmatization of Aging:
A significant theme in the book is the stigmatization of aging, which is often associated with Alzheimer's Disease. The book challenges the societal norms and stereotypes that perpetuate ageism and discrimination against older individuals. It highlights the contributions that older people make to society, their valuable experiences, and the importance of valuing and respecting the wisdom and resilience that come with age. The book also explores the ways in which caregivers navigate the challenges of caring for individuals with Alzheimer's Disease, including the emotional toll, social isolation, and the need for support and understanding.

Narrative Strategies:
The book examines the diverse narrative strategies employed by individuals living with Alzheimer's Disease and their caregivers. It explores the use of storytelling, poetry, memoir, and other forms of creative expression to convey their experiences and emotions. These narratives offer a powerful means of communication, allowing individuals to express themselves and connect with others on a deeper level. The book also analyzes the ethical considerations that arise in the production and dissemination of these narratives, including the importance of consent, privacy, and the preservation of dignity.

Health Activism and Advocacy:
Alzheimer's Disease is a complex and multifaceted condition that requires a comprehensive approach to care. The book explores the health activism and advocacy generated by individuals living with Alzheimer's Disease and their caregivers. It highlights the importance of raising awareness, promoting research, and advocating for better care and support systems. It also examines the challenges faced by advocacy groups and the impact they have had on shaping public policy and improving the lives of individuals with Alzheimer's Disease and their caregivers.

Ethics of Care:
Caregiving for individuals with Alzheimer's Disease is a challenging and demanding role that requires a deep understanding of ethical principles. The book examines the ethical considerations that arise in caregiving, including the balance between autonomy and care, the importance of respect and dignity, and the need for compassion and empathy. It offers insights into the ethical challenges faced by caregivers and provides guidance on how to navigate these challenges in a way that promotes the well-being and dignity of individuals with Alzheimer's Disease.

Conclusion:
In conclusion, this book provides a comprehensive examination of the writings by individuals living with Alzheimer's Disease and their caregivers. It offers valuable insights into the experiences, challenges, and strategies employed by these individuals and their caregivers. By exploring themes such as self-identity, stigmatization of aging, narrative strategies, health activism, and ethical considerations, this book contributes to our understanding of Alzheimer's Disease and the importance of caregiving. It serves as a valuable resource for scholars, researchers, and caregivers alike, offering a deeper understanding of the complexities of this disease and the potential for positive change in the lives of individuals with Alzheimer's Disease and their caregivers.

Weight: 267g
Dimension: 235 x 155 (mm)
ISBN-13: 9789811661143
Edition number: 1st ed. 2021