Consumer Genetic Technologies: Ethical and Legal Considerations

Genetic testing offers insights into one's unique makeup, but it raises ethical, legal, and regulatory challenges. This volume examines models for delivering consumer genetics and considers privacy, data aggregation, and healthcare disparities. It provides guidance on protecting consumer privacy and safety while promoting innovation.

Format: Paperback / softback
Length: 380 pages
Publication date: 16 September 2021
Publisher: Cambridge University Press

Genetic testing has two distinct faces for the average person. On the one hand, it is frequently heralded as the democratization of genetics, allowing individuals to gain insights into their unique genetic makeup. On the other hand, concerns have been raised about the disclosure of intensely personal and private information through genetic testing and sequencing. With the increasing availability of these technologies as consumer products, the ethical, legal, and regulatory challenges posed by genomics become increasingly prominent.

To address these challenges, this volume brings together multidisciplinary experts who evaluate the various models used to deliver consumer genetics. It also considers several key questions: How should we navigate privacy and ethical concerns surrounding genetic databases? Does aggregating data from genetic testing commodify individuals by commercializing their data? How might this data exacerbate or mitigate existing healthcare disparities? Contributing authors also provide valuable guidance on safeguarding consumer privacy and safety while fostering innovation in the field.

The rise of genetic testing has brought about significant advancements in our understanding of human genetics and has the potential to improve healthcare outcomes. However, it is essential to address the ethical, legal, and regulatory implications of these technologies to ensure that they are used responsibly and beneficially. By engaging in interdisciplinary dialogue and considering the diverse perspectives of experts, we can develop effective strategies to navigate the complexities of consumer genetics and promote the well-being of individuals and society as a whole.

Weight: 442g
Dimension: 151 x 228 x 20 (mm)
ISBN-13: 9781108812672