Ethical, Social and Psychological Impacts of Genomic Risk Communication

The book Ethical, Social and Psychological Impacts of Genomic Risk Communication explores the ethical implications of risk information related to genetics and other health data for policy decisions at clinical, research, and societal levels. It synthesizes the results of a five-year interdisciplinary project and examines the unsolved ethical and social questions around the sharing of this data, such as best practice in risk communication, normative presumptions, and ethical consequences.

Format: Paperback / softback
Length: 190 pages
Publication date: 30 May 2022
Publisher: Taylor & Francis Ltd

Ethical, Social and Psychological Impacts of Genomic Risk Communication delves into the profound ethical implications of risk information derived from genetics and other health data, impacting policy decisions at clinical, research, and societal levels. This comprehensive volume explores the introduction of novel health risk information facilitated by faster, cheaper, and larger sets of genetic or genomic analysis. Through the synthesis of findings from a five-year interdisciplinary project, it uncovers the complex ethical and social dilemmas surrounding the sharing of this data. Key questions addressed include: What constitutes best practices in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for one's health? How can we bridge the gap between knowledge of risk and the limited therapeutic options available for complex diseases like dementia or certain types of cancer? Drawing upon the expertise of over 20 esteemed experts in the field, this collection examines these critical questions from a liberal bioethics perspective, advocating for contextual and culturally sensitive ethical discussions.

This book holds immense value for students and scholars engaged in theoretical and clinical medical ethics, medical sociology, risk communication, and the ethics of risk. It is also essential for professionals working in clinical genetics, as it provides valuable insights into the ethical dimensions of genomic risk information.

Dimension: 234 x 156 (mm)
ISBN-13: 9780367627867