Not If, When: Lyme Disease in Verse

During the worst period of healing from Lyme, a patient must feel significantly worse before they begin to recover. This is called a Jarisch-Herxheimer (Herx) reaction, which can include panic attacks, brain fog, paranoia, depression, pain, affected vision, racing heart rate, dysfunctional thyroid, disrupted digestion, severe confusion, and amnesia. Not If, When is a collection of autobiographical poems that address the various frustrations and dynamics of living with chronic Lyme disease, providing a voice of solidarity and inspiration for those suffering from this devastating illness.

Format: Paperback / softback
Length: 136 pages
Publication date: 02 November 2020
Publisher: She Writes Press

The journey of healing from Lyme disease can be challenging, even for the most supportive and integrative healthcare providers. The process varies from person to person, but it is important to note that significant improvement typically begins only after a patient experiences a significant decline in their condition. Initially, when Lyme bacteria or other coinfections are targeted with antibiotics, herbs, or other treatments, they release toxins into the body faster than they can be eliminated. This phenomenon is known as a Jarisch-Herxheimer (Herx) reaction, which can manifest in a wide range of symptoms, including panic attacks, brain fog, paranoia, depression, pain, visual disturbances, rapid heart rate, thyroid dysfunction, digestive issues, severe confusion, and amnesia, among many others. The experience of herxing can be described as a complete and sometimes relentless nightmare, leaving patients exhausted and overwhelmed.

In the midst of this challenging period, autobiographical poems can provide solace and understanding. Arranged chronologically in the order they were written, these poems capture the devastation, trauma, and fear associated with living with chronic Lyme disease. They offer a voice of solidarity and inspiration for those who are suffering, providing a sense of connection and understanding. Written as a love letter to Lyme patients who are running out of patience, as well as to their family and friends, "Not If, When" is a clear-eyed, defiant, and poignant exploration of what it means to live—and sometimes even thrive—with Lyme disease.

Through its honest and raw portrayal of the experiences of Lyme patients, the book offers a glimpse into the lives of those who are fighting this devastating illness. It sheds light on the isolation, trauma, and fear that accompany chronic Lyme, as well as the resilience and determination that are necessary to overcome these challenges. The poems also provide a roadmap for navigating the complex healthcare system, advocating for oneself, and finding hope and support in the face of adversity.

In conclusion, "Not If, When" is a powerful and essential resource for anyone affected by Lyme disease. It offers a glimpse into the lives of those who are living with this illness, providing a sense of understanding, solidarity, and hope. By sharing the experiences of Lyme patients and offering practical advice and insights, the book empowers individuals to take control of their healing journey and thrive in the face of adversity.

Weight: 178g
Dimension: 140 x 215 x 14 (mm)
ISBN-13: 9781631527357