Will I Still Be Me?: Finding a Continuing Sense of Self in the Lived Experience of Dementia

Christine Bryden was diagnosed with dementia in 1995, but her experiences do not reflect the mainstream discourse of loss of self while living with dementia. In this book she explains why people with dementia have a meaningful and continuing sense of self and calls for a different understanding of dementia that results in greater inclusion.

Format: Paperback / softback
Length: 144 pages
Publication date: 21 August 2018
Publisher: Jessica Kingsley Publishers

Living with dementia can be a challenging and complex journey for individuals. It can impact their sense of self and alter their perception of the world around them. In this article, we will explore what a dementia diagnosis means for an individual's sense of self and how individuals can maintain a sense of self as the condition progresses.

One of the most significant effects of dementia on an individual's sense of self is the loss of memory and cognitive abilities. Individuals may struggle to remember important events, people, and places, which can lead to feelings of confusion, frustration, and sadness. This can also impact their confidence and self-esteem, as they may feel like they are losing a part of themselves.

However, it is important to note that a dementia diagnosis does not necessarily mean that an individual's sense of self is lost forever. There are many strategies and support systems that can help individuals maintain a sense of self and continue to live meaningful lives.

One of the most important strategies is to create a supportive environment. This can include family members, friends, and healthcare professionals who are aware of the individual's condition and are committed to providing support and guidance. It can also include activities and programs that promote socialization and engagement, such as group outings, art classes, and music therapy.

Another strategy is to focus on the individual's strengths and abilities. This can include highlighting their past experiences, interests, and hobbies, and encouraging them to continue participating in activities that bring them joy and fulfillment. It can also include providing training and support to help individuals develop new skills and abilities that can help them cope with the challenges of dementia.

Communication is also an important aspect of maintaining a sense of self with dementia. Individuals may struggle with cognitive changes that impact their ability to communicate effectively. However, there are many strategies and technologies that can help individuals communicate with others, such as speech-generating devices, picture boards, and social media.

In addition to these strategies, it is important for individuals to maintain a positive attitude and a sense of purpose. This can include engaging in activities that bring them joy and fulfillment, such as volunteering, pursuing hobbies, or spending time with loved ones. It can also include finding meaning and purpose in the challenges of dementia, such as helping others who are living with the condition or advocating for better care and support.

Living with dementia can be a challenging and complex journey, but it is important to remember that individuals can maintain a sense of self and continue to live meaningful lives with the right support and strategies. By creating a supportive environment, focusing on strengths and abilities, communicating effectively, and maintaining a positive attitude, individuals can continue to engage with the world around them and find joy and fulfillment in their lives.

In conclusion, a dementia diagnosis can have a significant impact on an individual's sense of self, but there are many strategies and support systems that can help individuals maintain a sense of self and continue to live meaningful lives. By creating a supportive environment, focusing on strengths and abilities, communicating effectively, and maintaining a positive attitude, individuals can continue to engage with the world around them and find joy and fulfillment in their lives.

Weight: 180g
Dimension: 140 x 215 x 12 (mm)
ISBN-13: 9781785925559